What a strange name for a diagnosis. Moebius. I still look at that and think of someone doing the robot dance for some reason. But anyway, this is Nutt's official diagnosis. I finally had my doctor write it down so I knew how in the hell to spell it so I could properly obsess over it via Google. Here's some sites and articles that I found so far if you'd like to familiarize yourself with this strange diagnosis:
The Moebius Syndrome Foundation - This seems like the "official" site with a lot of medical information and links to other sites.
The Many Faces of Moebius Syndrome - This seems like a more relaxed site with a lot of personal stories from people that have been diagnosed.
The Moebius Research Trust - This appears to be centered in the UK
The Foundation For Faces of Children - A brief, but comprehensive, overview on Moebius Syndrome and other craniofacial conditions that may affect children. Link takes you directly to the Moebius page.
10 Mystery Diseases You've Never Heard Of - This is from CNN Health. Guess what #10 is.
So there you have it. It's our prognosis. I guess we just have to wait and see if Nutt has any of the other symptoms that come along with it. Patience is NOT my strong suit.
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